Links and Resources
This page presents links to websites and articles about research issues of interest to Clinical Trial Volunteers. Please check back regularly as we will be adding to this page often.
Bayshore Home Health
http://www.bayshore.ca/
Bayshore Home Health developed the clinical guidelines for the ‘Research with Respect’ program. The company drew on its extensive experience in community care and adapted its protocols to help volunteers in Phase 1 trials.
Currently Running Clinical Cancer Drug Trials
WHO International Clinical Trials Registry Platform (ICTRP)
http://www.who.int/ictrp/en/
The WHO believes that "The registration of all interventional trials is a scientific, ethical and moral responsibility. " The mission of the WHO Registry Platform is to ensure that a complete view of research is accessible to all those involved in health care decision making. This will improve research transparency and will ultimately strengthen the validity and value of the scientific evidence base.
BC Cancer Agency Open Clinical Trials
http://www.bccancer.bc.ca/RES/ClinTrials/OpenTrials/
Follow the links in the blue left bar for information on open clinical trials at major centers in BC.
National Cancer Institute of Canada - Current Investigational New Drug Program Trials
http://www.ctg.queensu.ca/public/Clinical_Trials/public_ind_trial_summary.html
Their website states, "This information is intended for use by doctors and other health care professionals. If you are a cancer patient, we recommend that you discuss this information with your doctor, who knows you, and who has the facts about your disease. If you are interested in taking part in a clinical trial, your doctor can help explain how this information may apply to you, and if this is the best treatment option in your particular case. "
IFPMA Clinical Trials Portal
http://clinicaltrials.ifpma.org/
This portal, run by the International Federation of Pharmaceutical Manufacterers & Associations, provides doctors, patients and their families with simple access to information on clinical trials of drugs and vaccines. Search ongoing trials or search for clinical trial results.
www.ClinicalTrials.gov
http://www.clinicaltrials.gov/
This site contains thousands of clinical studies sponsored by the U.S. National Institutes of Health, other federal agencies, and private industry. Studies listed in the database are conducted in over 140 countries.
Current Controlled Trials
http://www.controlled-trials.com/
The stated aim of this website is to increase the availability, and promote the exchange, of information about ongoing randomised controlled trials worldwide. They are committed to providing free and open access to information about ongoing randomised controlled trials, and this remains the guiding principle behind the company's activities.
Resource Sites for Volunteers and Caregivers
CancerGuide: Steve's Strategic Guide to Phase 1 Cancer Clinical Trials
http://cancerguide.org/trials_phase1.html
CancerSource Patient Page
http://cancersource.com/Patient.pg
CanadaPharma - Canada's Research-Based Pharmaceutical Industries
http://www.canadapharma.org/
Clinical Trials Compensation Guidelines (PDF file)
http://www.medicinesaustralia.com.au/pages/images/Clnical Trials Compensation Guidelines.pdf
Influencing Change - A Patient and Caregiver Advocacy Guide
http://www.chpca.net/public_policy_advocacy/chpca_advocacy_
strategy/6-Influencing_Change-Oct_2006.pdf
National Cancer Institute (USA)
http://www.cancer.gov/
Options for Improving Public Access to Information On Clinical Trials of Health Products in Canada - Final Report by the Health Canada External Working Group on the Registration and Disclosure of Clinical Trial Information (EWG-CT) (Click here for PDF Version, 80K)
Phase 1 Study of CPX-1, a Fixed-Ratio Formulation of Irinotecan (IRI) and Floxuridine (FLOX), in Patients with Advanced Solid Tumors http://www.celatorpharma.com/CPX1_PhOne_ASCO0606.pdf
The above document is an actual Summary Published Upon Completion of a Phase 1 Clinical Trial. This document is of interest to potential volunteers, to see just what your efforts would likely generate. It actually is part of your legacy even though your name is not included in the document.
 *Note: to read the above example document, increase the "zoom" to 100% or more as shown to the right.
A Staff Dialogue on Phase I Trials: Psychosocial Issues Faced by Patients, Their Families, and Caregivers
http://theoncologist.alphamedpress.org/cgi/content/full/3/5/357
 PDF files require the FREE Adobe Reader. Download it here.
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