Cancer Research: Information from a Patient / Caregiver Perspective

Research with Respect - Information, Support & Advocacy for Phase I Oncology Clinical Trial Volunteers
Cancer Research Information for Terminally-Ill Volunteers



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Self-Help Forms

You must retain your personal power and take an active role in the day-to-day care of your health. "Research with Respect" provides support, networking and tools to help in the retention of that power.

The following forms are intended to assist you in your advocacy for timely, efficient and quality care.

Physical Assessment Guide (PDF, 63 kb)- A printable, useful reference for determining whether changes in your health status are within the "normal" range or are abnormal. Abnormal symptoms can be documented in the Patient Self Diary (below) and reported to a Health Care Professional.

Patient Self Diary (PDF, 54 kb) - The printable Patient Self Diary is a handy form for documenting any changes in your health status, including their severity and treatment (intervention). This form can be helpful in communicating with health care and/or research team members. The printable Patient Self Diary Example (PDF, 68 kb) shows you how to get the most from this tool.

These files require the Adobe Reader - Click here to downloadYou will require the Free Adobe Reader to view PDF files. You can download it by clicking here.

It's Your Life!

The following excerpt is from the "Toward 2020 Visions for Nursing" article located on the website quote from Sister Elizabeth Davis - Chair, Canadian Health Services Research Foundation, 2005:

"We're in a new place; we're not on the edge of the old place. We're not pushing the envelope; we're in a totally new envelope. So the rules have changed. Every fundamental premise of the old way of thinking no longer applies."

From the Forum's Determinations: "Self-care and patient-led care are the norm. Health care professionals are partners and consultants with patients and families in a "shared-care" model of responsibility and accountability for health and illness care."

Click here to read the entire "Toward 2020 Visions for Nursing" article (PDF, 1.2 MB, opens in a new window).

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Support and Information for Phase I Oncology Clinical Trial Volunteers in Canada

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